I want to preface this post by saying that I know that this may cause visceral reactions in some. I experienced something today that brought to mind a subject I have long had opinions about but was not brave enough to write about. I think it is now time for me to cover it. The… Continue reading Lyme Disease “Lemons”
It has been over a year since my last post. I am guilty of doing exactly what I promised myself I wouldn’t. I quit sharing my story. Not because I am feeling bad- in fact it is actually the complete opposite. I feel great. Going to Germany was 100% the best thing I have ever done. … Continue reading After a long pause….
It has been a while since I last posted and a lot has transpired. We were all set to head back to Klinik St Georg this summer but ran into some issues that delayed our trip. One main thing that we wanted to happen before us leaving was that we wanted to get a better… Continue reading Searching for answers
Yesterday was Chloe’s birthday and we all got a great present! We heard back from the Klinik with dates for her retreatment! June 8th – 22nd. They spoke with me a little on them doing some additional treatments such as cell therapy and fever baths. I am going to check back in with them and… Continue reading We have dates!
Here is an update on where we are at now. We spoke with the klinik about getting Chloe retreated. Our doctor here in town wondered if the seizure medication Chloe is on could have impacted the result of treatment by some how protecting a few spirochetes in her brain. We also spoke with Chloe’s pediatric… Continue reading The Wait
We heard back from the klinik this morning and it appears we will be heading back to Germany for a second round of treatment for Chloe. We found out that full relapses like Chloe’s are basically unheard of, so we are very hopeful that she will have success this time around! We are working… Continue reading News
I want to preface this post by saying that I have been very open with my symptoms and experiences, but have intentionally not gone into great detail about Chloe because I don’t feel it is my story to tell. Everything I do mention about her, I check with her first and try to avoid giving… Continue reading The post I didn’t want to write.
I have been getting a lot of messages with questions about our experience at the klinik, so I have merged them into one place here with all of the answers! It is also on the Stuck in the Lymelight Facebook page under notes. I will do another document as I get more questions too. How… Continue reading FAQ
Im going to preface this post by giving a disclaimer. There may be a lot of typos and grammatical errors as I’m typing through tears. I didn’t realize until this morning that I have been holding my breath for the last four months. I felt great, but there was always that “What if” lingering somewhere… Continue reading Results
The article below made me think of one of the big culture shocks we experienced at the Klinik. They don’t wear gloves when inserting cannulas, or changing IVs. Does that freak you out? It TOTALLY did me! I had already dealt with getting a staph infection from my PICC line insertion last July so… Continue reading Culture Shock