It has been over a year since my last post. I am guilty of doing exactly what I promised myself I wouldn’t. I quit sharing my story. Not because I am feeling bad- in fact it is actually the complete opposite. I feel great. Going to Germany was 100% the best thing I have ever done. I have my life back. I have no pain. I hardly ever get sick and when I do, I recover in normal time frames. No more heart palpitations. No more joint pain. I haven’t had a muscle spasm since before my first hyperthermia. My brain fog is non-existent and in fact, I am finally following a dream I have always had and writing a book. With Lyme this would not have been possible as I struggled to put a sentence together.
Why did I become less enthusiastic about my story? I guess I became disenchanted. Many people contacted me, whether they found me through this blog or through friends and family. They wanted all of the details which I am more than happy to share, but then I began to notice a strange trend. It became less about me sharing my story and more about me defending the treatment method and/or my recovery. Don’t get me wrong, many people have gone to Germany and had success after hearing about mine. That makes me unbelievably happy. Each time I hear from someone who is now better, my heart seriously bursts. But a new group of people came out of the woodwork. They were the ones usually sent from a mutual friend or family member. I take my time to give them the info I have and answer any questions they have. (One phone call was over two hours!!) They all end up telling me that they either A. Do not believe in the treatment B. Wonder if I get kickbacks from the Klinik (I do NOT benefit in any way from anyone receiving treatment in Germany. Just want to help others) or C. Have their own treatment plan they are following and they were just curious- which is fine except I just wasted a lot of my time on something they were never considering. After countless of these interactions, I am ashamed to say I stopped responding to a lot of people.
Over the weekend, I read another blog from a girl around my age who had the same treatment. She has had fertility issues with her husband for over six years and is now pregnant a mere six months after getting back from Germany. Reading this reminded me that it IS important to share my story. People ARE getting better and completely recovering from Lyme.
I also read another story over the weekend about a very young mother who passed away from Lyme complications. Now, I do not know whether treatment at the Klinik would have saved her life, but I do know that it has saved others. It breaks my heart to see people dying from this disease when there is a cure available. The lack of acknowledgment of this by “Lyme literate doctors” in America is a whole ‘nother post, and I am sure a controversial one. I will save that for another day.
I am not going to feel guilty for getting better, and I am sure as heck not going to stop telling my story. (Although I will probably start referring people here for information instead of giving the one on one attention I was trying to.) I do believe strongly in Dr. Douwes and what they are doing at the Klinik in Bad Aibling.
For information on the treatment I had, please go to http://cancerclinicstgeorg.com/en/lyme-disease-treatment-center